"We knew something was wrong"
“Eve has spent the last year fighting; everyone has put their life on hold for our beautiful daughter”
Parents, Mark and Sarah McGonigle
Eve was a healthy and well little
girl for the first two years of her life. She was developing normally and
went off to nursery aged two.
Around that time, though, she started to lose weight, was unsteady on her feet, began to vomit a lot and was off her food. “We knew there was something wrong” says Mark “and that it wasn’t just a virus. She was rushed to Sick Kids after a particularly bad bout of vomiting and a scan revealed a large brain tumour that had clearly been growing for some time. She was rushed off for emergency surgery that day to relieve fluid pressure on her brain, without this she would have lost her life very soon afterwards.”
The tumour was successfully
removed a fortnight later after eight hours of surgery, but pathology results meant
further treatment was required to try and avoid regrowth in the future. Eve was
too young to have radiotherapy and chemotherapy was not an option for this type
of tumour. So the family opted to travel to Oklahoma for proton beam therapy and hoped
that Eve was clear.
"Eve's back at the Sick Kids now and has been fighting her condition ever since”
Mark, Eve's dad
But as dad, Mark, explains, “Around February 2015 we noticed that Eve couldn’t walk properly and had started to deteriorate, this was due to her not being able to cope with the dose of radiation she was given in America, and has resulted in significant brain damage. She’s back at the Sick Kids now and has been fighting her condition ever since”.
Eve has a little sister, Lily, who also needs love and attention. Mum, Sarah says, “Lily knows who Eve is, but she’s never had a sister in the traditional sense as Eve has been unwell since Lily was three months old. It’s been a really hard slog for us all”.
“The support we’ve had has been fantastic”, says Mark, “and we want to make sure we help other families like ourselves. That’s why we’ve been raising funds for the Edinburgh Children's Hospital Charity so that families who use the new children’s hospital at Little France will benefit from all the extras that Eve, and we, have enjoyed”.
Making a real difference
Arts and activities
Our arts and activities make all the difference.Continue reading
Mum, Lisa, decided to help by raising funds, enabling SKFF to provide vein finders for the hosptialContinue reading
Lyndsey talks about how the Drop In Centre helped her.Continue reading
Paula explains why being away from home can be so toughContinue reading
Taking on the Big Fun Run 5K after doctors predicted she may never walkContinue reading
Fiona Harvey, Emily's mum, explains how it's been a long haul for her family.Continue reading
How ECHC provide a helping hand through traumatic timesContinue reading
Dancing for health
Our dance school partnership that's bringing boogie and ballet to the bedsideContinue reading