Making Memories

For children at high risk and those approaching end of life, memory making activities are hugely important in providing comfort to them and their families. Your donations make these activities possible. 

In April 2019, age 6, Eilidh died at home. In the months before, like many other families in the care of the hospital palliative care team, she and her family benefitted from your support. Thank you.

Here, Eilidh's mum Pamela, tells us about her special girl: "Our daughter Eilidh was born with Jouberts Senior Loken Syndrome - a genetic condition that effects 1 in  1 million. It affected her neurological development and, at age 4, she was also diagnosed with stage 3 kidney disease, an associated condition.

"Despite her diagnosis, Eilidh as not a "sick" child. She had only spent 20 odds nights at the Sick Kids throughout her short life. It was our wish that Eilidh be treated remotely from the hospital as much as possible - a wish that was made possible by the palliative care team.

"Our beautiful girl charmed everyone she met; her obvious joyful spirit transcended any developmental limitations. She taught us all so much. In 2018, Eilidh's kidney disease because terminal and she died peacefully at home on 22 April 2019.

"In the months before her death, we took part in memory making activities, funded by Edinburgh Children's Hospital Charity. I have so many lovely memories of our family taking part in these activities together. We painted, felted, made 3D pictures, made hand casts, blanket making and created Christmas tree decorations.

"We loved the mess Eilidh would make with the paint, her trying to eat the dried pasta, the way her face would light up when she recognised Ruth from palliative care and her bag of fun when she came to see us.

"Thanks to the charity, we have a shelf filled with the treasures Eilidh created. I like to see things she has touched. I often touch them too, tracing where her fingers have been. It gives me immense comfort remembering how she embraced these experiences and the joy they brought us."

- Pamela, Eilidh's mum

"The sessions themselves were just as important as the fun and the keepsakes as they helped the care team get to know Eilidh and our family.

"The team behind all those lovely activities, who had seen us laugh and smile now became the people we needed to lean on to help guide us through the most difficult and sad stage of Eilidh's illness. They knew what our wishes were and helped us make that happen. All those difficult conversations we had over paint and glue came to fruition, but we were prepared as best we could have been.

"Thanks to the charity, we received a family of four knitted elephants. They spent time with Eilidh after she died and we put one in her coffin with her. The remaining three elephants sit on her bed at home and because elephants never forget, these three will never forget they were once four." - Pamela, Eilidh's mum

Every year, your donations fund special memory making activities and items to support and bring comfort to families in hospital and in the community. Thanks to your kindness, families have time to enjoy shared activities together, have space to have difficult conversations over paint and glue and have special keepsakes to remember their child through bereavement.

If you are in a position to do so, please consider clicking here to make a donation today. Your support could help families create precious and lasting memories with their child. Thank you.

More stories

Making a real difference

Giving Children the Chance to be Seizure Free

How an ECHC partnership is bringing cutting edge epilepsy laser surgery to Scotland for the first time

Continue reading

Sick Kids Memories Time Capsule

Commemorating the Royal Hospital for Sick Children

Continue reading

Mara's Story

Your donations helped Nicky and Mara stay together in hospital

Continue reading

Transforming CAMHS

How we enhanced Child and Adolescent Mental Health Services at the RHCYP

Continue reading

Arts and Activities

Our arts and activities make all the difference.

Continue reading

Funding equipment

Mum, Lisa, decided to help by raising funds, enabling ECHC to provide vein finders for the hospital

Continue reading

Supporting families

Lyndsey talks about how the Drop In Centre helped her.

Continue reading

Hope's story

Taking on the Big Fun Run 5K after doctors predicted she may never walk

Continue reading

Emily's story

Fiona Harvey, Emily's mum, explains how it's been a long haul for her family.

Continue reading

"We knew something was wrong"

Read about little Eve's fight and how her family has coped

Continue reading

Cameron's story

How ECHC provide a helping hand through traumatic times

Continue reading

Dancing for health

Our dance school partnership that's bringing boogie and ballet to the bedside

Continue reading

Halloween in hospital

Potion making and more

Continue reading

Supporting St John's Hospital

Supporting St John's Hospital

Continue reading