Lyle's Story

Supporting families

"I like going to the Drop In Centre to escape for a while and just sit with a cup of tea – and it's somewhere I can spend time with my other wee boy.ʺ

Lyndsey – Lyle's mum

For families, any visit to the hospital can be a stressful time.  Edinburgh Children's Hospital Charity exists to support families as well as the children who are having treatment in the hospital.

Lyndsey and Lyle

Lyle is 13 months old and has been in hospital for over a quarter of his life. His mum, Lyndsey, explains what brought him in. ʺWe first came here with Lyle after he`d picked up an infection, but at the time we were also worried because we'd noticed a tremor down his left sideʺ.
An MRI scan discovered a large tumour pressing on Lyle`s optic nerve. "Because of where it is they can't operate to try and remove it as it would kill him. We are just having to take each day as it comes at the moment." says Lyndsey.  As Lyle undergoes chemo- and radiotherapy, Lyndsey has been staying at the hospital.  "I've not slept at home for 55 nights - it's really tough but you just get on with it at the end of the day. Lyle's always smiling – you'd never know he was so poorly!"





"we are just trying to make every day count which is why Edinburgh Children's Hospital Charity really help – it's little things that make it easier".

Lyndsey

The benefit of 'dropping in'

The Drop In Centre, funded by Edinburgh Children's Hospital Charity, has been a haven away from the hospital wards for Lyndsey, who has another son - Chris, aged two. ʺI like going to the Drop in Centre to escape for a while and just sit with a cup of tea – and it's somewhere I can spend time with my other wee boy. I've even had a couple of massages in the therapy room which really helped me relax – it's difficult when we're facing everything we've got to deal withʺ




In the family

Lyle's brother, Chris, had surgery to remove a large benign tumour from his pelvis last year. Doctors are looking into a possible genetic link as Lyndsey's Dad, ex Scotland and British Lions Rugby player, Bruce Hay, died of a brain tumour when she was 15. "It's so hard seeing the boys going through the same thing he did, we are just trying to make every day count which is why Edinburgh Children's Hospital Charity really help – it's little things that make it easier".



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